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Research Output - Special needs covid

Here you will find maps, infographics and publications related to this project.

World and detailed US Reports

These are maps that are regularly updated with the numbers of surveys (at least 25%) completed, but not in real time. It gives an estimation per country before data cleaning. Numbers can still change. Countries with less than 10 entries do not report details.

Participants timeline

World Report (09/08/2020)

US Report (09/08/2020)

Infographics

2023

  • Di Poi, G., Dukes, D., Meuleman, B., Banta Lavenex, P., Lavenex, P., Papon, A., Tran., M., Stallmann, L., Treichel, N., & Samson, A. C. (2023). Increased anxiety in families of individuals with neurodevelopmental conditions in the early months of the COVID-19 pandemic in Switzerland. Frontiers in Education, 8, 1-17. https://doi.org/10.3389/feduc.2023.951970
  • Martínez-Castilla, P., Campos, R., Samson, A. C., Van Herwegen, J., & Dukes, D. (2023). Ansiedad percibida en familiares cuidadores de personas con Trastorno del Espectro Autista, Síndrome de Down y Síndrome de Williams durante el confinamiento de la primera ola por COVID-19 en España [Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain]. Actas Españolas de Psiquitría, 51(2), 56-64. https://www.actaspsiquiatria.es/repositorio/26/142/ESP/26-142-ESP-56-64-870384.pdf
  • Sideropoulos, V., Kye, H., Dukes, D., Samson, A. C., Palikara, O., & Van Herwegen, J. (2023). Anxiety and worries of individuals with Down syndrome during the COVID-19 pandemic: A comparative study in the UK. Journal of Autism and Developmental Disorders, 53(5), 2021-2036. http://dx.doi.org/10.1007/s10803-022-05450-0
  • Sideropoulos, V., Sokhn, N., Palikara, O., Van Herwegen, J., & Samson, A. C. (2023). Anxiety, concerns, and emotion regulation in individuals with Williams syndrome and Down syndrome during the COVID-19 outbreak: A global study. Scientific Reports, 13(1), Article8177. https://doi.org/10.1038/s41598-023-35176-7
  • Sideropolous, V., Van Herwegen, J. Meuleman, B., Alessandri, M., Faisal, A. . . . Samson, A. C. (2023). Anxiety, worries and COVID-19: Global perspectives from families and individuals with neurodevelopmental conditions. Journal of Global Health.  
  • Wang, F., Memis, I., Durocher, J. S., Furar, E., Cavalcante, L., Eshraghi, R. S., Samson, A. C., Van Herwegen, J., Dukes, D., Alessandri M., Mittal, R., & Eshraghi, A. A. (2023). Efficacy of coping mechanisms used during COVID-19 as reported by parents of children with autism. PLOS ONE, 18(4), Article e0283494. https://doi.org/10.1371/journal.pone.0283494

2022

  • Alenezi, S., Temsah, M-H., Alyahya, A.S., Almadani, A.H., Almarshedi, A., Algazlan, M.S., Alnemary, F., Bashiri, F.A., Alkhawashki, S.H., Altuwariqi, M.H., Alsedrani, R., Alkhiri, A. & Alarabi. M. (2022). Mental health impact of COVID-19 on Saudi families and children with special educational needs and disabilities in Saudi Arabia: A national perspective. Frontiers in Public Health 10:992658. https://www.frontiersin.org/articles/10.3389/fpubh.2022.992658/full
  • Di Poi, G. & Samson, A. C. (2022). Emotionen in Zeiten der Pandemie - Wie haben Familien mit Kindern mit sonderpädagogischem Förderbedarf und Behinderungen die COVID-19 Pandemie erlebt? Menschen, 3, 4, 10-12.
  • Furar, E., Wang, F., Durocher, J. S., Ahn, A., Memis, I., Cavalcante, L., Klahr, L., Samson, A. C., Van Herwegen, J., Dukes, D., Alessandri, M., Mittal, R., & Eshraghai, A. A. (2021). The impact of COVID-19 on individuals with ASD in the US: Parent perspectives on social and support concerns. PLOS ONE.https://doi.org/10.1371/journal.pone.0270845
  • Samson, A. C., Sokhn, N., Van Herwegen, J., & Dukes, D. (2022). An exploratory study on emotion regulation strategy use in individuals with Williams syndrome, autism spectrum disorder and intellectual disability. Frontiers in Psychiatry, 13, Article 940872. https://doi.org/10.3389/fpsyt.2022.940872
  • Sideropoulos, V., Kye, H., Dukes, D., Samson, A. C., Palikara, O., & Van Herwegen, J. (2022). Anxiety and Worries of Individuals with Down Syndrome During the COVID-19 Pandemic: A Comparative Study in the UK. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-022-05450-0 link
  • Sideropoulos, V., Sokhn, N., Palikara, O., Van Herwegen, J., & Samson, A. C. (2022). Anxiety and emotion regulation in young people with Williams syndrome and Down syndrome during the COVID-19 outbreak: A global study. [Manuscript submitted for publication]. https://psyarxiv.com/bh6tk/

2021

  • Di Poi, G., Dukes, D., Tran, M., & Samson, A. C. (2021). Comment les familles d’enfants avec besoins éducatifs particuliers ont vécu la crise de la COVID-19 : Observations préliminaires pour la Suisse. [How families with children with special educational needs experienced the Covid-19 crisis: preliminary observations for Switzerland]. Revue suisse de pédagogie spécialisée. 1, 9-18. Read here (French)
  • Dukes, D., Van Herwegen, J., Alessandi, M., Alnemary, F., Amani Rad, J., Banta Lavenex, P., Bolshakov, N., Bölte, S., Ying Cai, R., Campos, R., Chirita-Emandi, A., P. Costa, A., Costanzo, F., di Poi, G., Des Portes, V., Faivre, L., Famelart, N., Fisher, M., Gamaiunova, L., … Samson, A. C. (2021, February 15). Introducing the COVID-19 crisis special education needs coping survey. PsyArXiv. https://doi.org/10.31234/osf.io/rtswa
  • Dukes, D., & Samson, A. C. (2021). COVID-19 : Donnons la parole aux parents d’enfants avec des besoins éducatifs particuliers [COVID-19: giving voice to the parents of children with special educational needs]. Pages romandes : Revue sur la pédagogie spécialisée les déficiences intellectuelles et développementales, 3, 28-31.
  • Prosetzky, I., Poustka, L., Dukes, D., & Samson, A. C. (2021). Eine internationale Studie zu Auswirkungen der COVID-19-Pandemie auf Familien mit einem behinderten Kind: Wie ging es den Familien in Deutschland? Ein Bericht. [An international study on the impact of the COVID-19 pandemic on families with a child with special educational needs: How did German families fare? A report]. Teilhabe, 60, 2. Read here (German)
  • Samson, A. C., Di Poi, G., Tran, M., & Dukes, D. (2021). Die Auswirkungen der COVID-19 Pandemie in der Schweiz: Erste Beobachtungen bei Familien mit Kindern sonderpädagogischem Förderbedarf [The effects of the COVID-19 pandemic in Switzerland: First observations in families with children with special educational needs]. Schweizerische Zeitschrift für Heilpädagogik, 27(5-6), 18-25. [The link will be available soon].
  • Sideropoulos, V., Dukes, D., Hanley, M., Palikara, O., Rhodes, S. Riby D., Samson, A. C., & Van Herwegen, J. (2021, February 3). The impact of COVID-19 on anxiety and wellbeing for families of individuals with Special Education Needs and Disabilities in the UK. PsyArXiv https://doi.org/10.31234/osf.io/gyhd9
  • Su, X., Cai, R. Y., Uljarević, M., Van Herwegen, J., Dukes, D., Yang, Y., Peng, X., & Samson, A. C. (2021). Brief Report: A cross-sectional study of anxiety levels and concerns of Chinese families of children with special educational needs and disabilities post-first-wave of COVID-19. Frontiers in Psychiatry, 12, 708465. doi: 10.3389/fpsyt.2021.708465

2020

  • Hrnčířová, L., Jariabková, K., & Zámečníková, D. (2020, September 17). Mezinárodní výzkum dopadu pandemie covid-19 na rodiny dětí se speciálními potřebami: Průběžná informace [International research on the impact of the covid-19 pandemic on families of children with special needs: An update] [Poster presentation]. Psychologické dny 2020, Olomouc, Czech Republic. https://drive.google.com/file/d/1AP2N2lnT1wg6Gf3Kil5NizZCWjf9jh70/view
    About this poster: A psychology day took place in Olomouc, Czech Republic. We presented a poster with the main information about the research project - its aims, participating countries, initial results and recommended procedures according to the short report prepared by Jo Van Herwegen with a team of authors. The abstract is available at the conference website: http://www.psychologickedny.info/p/blog-page_2.html
  • Samson, A. C. (2020, September). Wie geht es Familien von Kindern mit besonderen Bedürfnissenwährend der COVID-19 Pandemie? Eine internationale Studie [How are families of children with special needs doing during the COVID-19 pandemic? An international study]. Wissenschaftlichen Gesellschaft Autismus-Spektrum, 16, 10–14. http://wgas-autismus.org/wp-content/uploads/2020/09/Newsletter_0920_bunt_final.pdf
  • Van Herwegen, J., Dukes, D., & Samson, A.C. (2020). COVID19 Crisis Response Survey for families of Individuals with Special Needs [Data set]. OSFHOME. Retrieved May 27, 2020, from osf.io/5nkq9
  • Van Herwegen, J., … Samson, A.C., & Dukes, D. (2020). Written evidence submitted to the UK government on the impact of COVID-19 on education and children’s services: The impact on families of children with Special Educational Needs and Disabilities in the UK. Retrieved July 23, 2020. https://committees.parliament.uk/writtenevidence/8883/pdf/